learning to live and love from a new perspective

Archive for May, 2012

Sister Love

According to G: “S is my sister. She’s the greatest. She’s my best friend. I love my sister, S.” He says this several times a day.

This makes me happy

Taking It All In

I was wondering what G was thinking about when we went to the sprinkler park today. I could tell he was enjoying it… but he was very, VERY quiet.


The other name of the game in our house is SLOW. As in SSLLLOOOOOOOOW. As in the average time it takes to get dressed is 20 minutes. The average time it takes to eat breakfast is 35 minutes. The average time it takes to put on shoes, put on coat and get in the car is 22 minutes. In case you’re keeping track, that means to be ready for an 8:15 departure for school, G needs 67 minutes of undivided adult attention. No wonder we never get anywhere on time!

Two Words: Cognitive Rigidity

The name of the game in our house (as I’m sure is the same as so many homes affected by autism) is “cognitive rigidity”. With so much internal chaos due to sensory processing difficulties, G latches on to his routines and rituals. At breakfast, his place needs to be set the same every day. From left to right: vitamin on napkin, then plate, then milk. Who goes up the stairs first? G, always G. One day, I had the audacity to park in a DIFFERENT spot when we went to drop S off at school. (I thought it might save time to undershoot, and walk the extra block, rather than overshoot, and circle around to where we normally park. In case you were wondering, after we finished with the twenty minute tantrum, no time was actually saved.) So, yeah, if you want to know how our family is affected by autism? Two words: cognitive rigidity.

Hebrew School

So proud! I’ve been thinking of enrolling G in the preschool class I teach once a month at our synagogue. The first time I took G to “try it out”, he only lasted about ten minutes. We then tried it a few more times. Each time, he lasted a little bit longer. Today he was able to be with the class the whole time!!! Send me the paperwork…. I’ve got a kid to enroll!

Because We Don’t Have Enough to Worry About

Okay, so nobody told me way back at the beginning about the associated medical problems that are associated with autism. The constipation that he’s had since, I don’t know, birth? Increased frequency among kids on the spectrum. And how’s this for fun? Let’s throw in a seizure disorder. Because we don’t have enough to worry about…

And The Award for Best Potty Trainer in the Special Needs Category Goes To…

You want to know what was really NOT fun? Potty training. Potty training in general is not for sissies. But potty training with special needs? That takes it to a whole new level. G had a total fear of peeing on the potty. And, while most of the time he is sweet, lovable, and easy-going… when it comes to doing something he doesn’t want to do… his stubbornness is nothing short of astonishing. So, here’s how the potty training went in our house. First, we had to get rid of D and S. Not for an hour or two. Not for the morning. For the WHOLE DAY. Because, when G decided he wasn’t going to pee on the potty… that meant he was going to hold it. All day. I could wait him out for 4-4.5 hours. But when hour five rolled around, I caved and slapped on a diaper. Boom. Out came the pee. Weekend, after weekend, after weekend. S and D went to the science museum, children’s museum, Hebrew school, visit to grandma’s house. What did G and I do? Potty train. Weekend after weekend after weekend. Now, a full ten months after the first attempt, I would say we are pretty close to finished. But, man, this is a job that has me earning the title of supermom!!

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